Syringomyelia (sear-IN-go-my-EEL-ya); also known as SM, is a Syrinx (also known as a tubular filled cyst) that forms inside of the spinal cord.
Chiari Malformations (CM) (key-Ar-ee-mal-for-MAY-shun): are structural defects in the cerebellum, the part of the brain that controls balance. When the “tonsils” of the brain stem fall below the base of the skull, it cuts off or blocks the flow of Cerebral Spinal Fluid that runs between the brain and the spinal cord.
For anyone who has not had the chance to attend a conference where patients are able to meet, talk to, and learn from those on the cutting edge of research and treatment of SM and CM - then you should try to get to one of these! ASAP…Continue
All good things must come to an end. This is the final episode of the 2015 Crossfit Open Season and once again, The Crossfit director has tested the limits as the final event includes Thrusters and Calorie Rows. Thrusters are no fun. Come see me…Continue
Award #4: Ajax Civic Award, just got a letter from Mayor Steve Parish, Town of Ajax. I was selected for one of the Towns most prestigious Awards. The Mayor will present me with the Award at the Volunteer Recognition Award Ceremony April 14, 2015.…Continue
This is a bit long but here it goes,A little background on me: In my professional life, I was a Quality Engineer, it's in my blood. I started at the bottom and worked my way up, the old fashion way. It's also my personality type that drove me to the…Continue
Started by SM Debiann. Last reply by mandy orpen sm 17 hours ago.
My surgical routine - and yes sadly I have one.1. Check into stores grocery delivery services. Many like giant(peapod), and Safeway have them. It is a great way to feel you are still contributing yet it is all done with just a few clicks and takes…Continue
Started by Beeba 21 hours ago.
Has anyone gone on vacation while they were on ODSP? Like for example a couple of weeks to the US. And what happens if you need to go to the hospital? I can't get my caseworker to call me back. :( Thanks.Continue
Started by Robin (SM) (ACM). Last reply by Abby on Friday.
Carion Fenn Foundation coming soon, we are thankful for the support of the Patti Dawson Award, making it possible to have a foundation that will help provide support around the world, help increase awareness about Syringomyelia & Chiari Malformation.
We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:
We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.
Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally:
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