Our virtual Community is a place to share, learn & support those affected with SM & CM, & the medical professionals that treat them.

Awards (Carion Fenn)

Town of Ajax Accessible Award

Town of Ajax have selected our Founder, Carion Fenn, for the Accessibility Community Award for 2013. Shawn Collier, Regional Councillor presented Carion Fenn with the Accessibility Award. 

Network Subscription:

Become a Subscriber to our Network, and help support our programs. When you chose to become a subscriber, we will send you a Syringomyelia or Chiari Malformation Wristband, and a brochure, along with a thank you letter for your support. $15/Year, a great way to help build our community while giving and getting support. Thank you! (Optional). Joining this network is free but you can help us with our support programs by subscribing. 

SM & CM Awareness Products

Wristbands <Click Here> 

T-Shirt: <Click Here> 

Cards: <Click Here>

Order your products today and help support our causes. 


Rogers TV- Talk Durham Nov. 27/13

Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member), Carion Fenn (Founder), Carion Fenn Syringomyelia & Chiari Network), & Kellie (CFSCN Member).

Talk Durham - Rogers TV- Channel

Debra Talked to Carion, members of our social  network (NancyKellie), & Callers including Jamie McDonald, Sue, Harlen & Christine about the issues faced with living with Syringomyelia & Chiari Malformation. We will have segments available online soon. The response was that the show was very informative, and a great resource to help educate others. Click on the thumbnail below to view videos. 

A full copy of the show can be ordered by clicking the below link: 

Rogers TV Dub Request (Click here)

MP Chris Alexander & Carion Fenn

Carion Fenn(Left), Founder of Carion Fenn Syringomyelia & Chiari Network with Chris Alexander, Canada's Minister of Citizenship and Immigration & (MP) Member of Parliament Ajax-Pickering at the Chris Alexander MP's Fall Fete September 22, 2013. 

Proclamation Received

Town of Ajax - (Mayor Steve Parish)
City of Toronto - (Mayor Rob Ford)
City of Oshawa - (Mayor John Henry) 
City of Markham - (Mayor Scarpitti)
City of Pickering - (Mayor David Ryan) 
Town of Oakville - (Mayor Rob Burton) 
Syringomyelia & Chiari Malformation dates July 17 and September formally recognized by the Town of AJAX, On Canada Mayor Steve Parish for the first time in Canadian History in 2013. 

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Latest Activity

Profile IconDebra Langdon (SM) and elizabeth eberth (sm) (ACM) joined Syringomyelia & Chiari Network's group

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Georgia Network (USA) Welcome to Georgia Network, A Network Group in Georgia, USA for all those who…See More
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 SM & CM Statistics (Social Network):


We welcome and need those who suffer with Syringomyelia and Chiari Malformation to join our Social Network.  This will enable us to provide a more accurate count of people living with these conditions.  In addition, it will give people the opportunity to find someone in their area who shares these conditions.  The social network allows you to see how many people in a specific country, state or province has our conditions. Your membership is important to us and we want to ensure that you have the statistics and information you need. 

Blog Posts

Becoming a Network Subscriber & Help support our causes

Posted by Syringomyelia & Chiari Network on January 30, 2015 at 4:00pm 1 Comment

Become a Subscriber to our Network, and help support our programs. When you chose to become a subscriber, we will send you a Syringomyelia or Chiari Malformation Wristband, and a brochure, along with a thank you letter for your…


Volunteers Needed

Posted by Syringomyelia & Chiari Network on January 30, 2015 at 12:34pm 4 Comments

If you are passionate about helping to provide support for those affected with Syringomyelia & Chiari Malformation and want to do more to help support our community and increase awareness. We want you on our team. Please comment here, or send…



Clinic in Barcelona claims to have a cure!!! 10 Replies

This is a bit long but here it goes,A little background on me: In my professional life, I was a Quality Engineer, it's in my blood. I started at the bottom and worked my way up, the old fashion way. It's also my personality type that drove me to the…Continue

Started by SM Debiann. Last reply by SM Debiann Jan 23.

Syrinx and syringomyelia 2 Replies

I have a question.It is my understanding that even though they go hand in hand a syrinx and syringomyelia are 2 different things. Following a spinal cord injury 25% of patients develop a syrinx but it is only when the syrinx starts to fill with…Continue

Started by Morag Mackay (SM). Last reply by Morag Mackay (SM) Jan 23.



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    Carion Fenn Foundation

    Carion Fenn Foundation coming soon, we are thankful for the support of the Patti Dawson Award, making it possible to have a foundation that will help provide support around the world, help increase awareness about Syringomyelia & Chiari Malformation. 


    Petition to the Government of Canada and Members of Parliament: 

    We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:

    We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.  

    Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally: 

    Local Network

    St. Catherine's, ON Canada (Lori Hart)

    Nicole McFadden

    Ken Anderson

    Mary Rudy

    Jeremy Webb



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