Syringomyelia (SM) (Sear-IN-go-my-EEL-ya); also known as SM, is a Syrinx (also known as a tubular filled cyst) that forms inside of the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the center of the spinal cord.
Chiari Malformations (CM) (Key-Ar-ee-mal-for-MAY-shun); are structural defects in the cerebellum, the part of the brain that controls balance. When the “tonsils” of the brain stem fall below the base of the skull, it cuts off or blocks the flow of Cerebral Spinal Fluid that runs between the brain and the spinal cord.
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I had my first offical visit with a NS who has formally diagnosed me with a syrnix. The physician assistant I saw for my back missed the whole thing and when I noticed it on the MRI he told me nothing to worry about fortunately I have a medical…Continue
I have a question for those with CM that had the surgery. Did you test well on the Neurological exam? The one were they check your reflexes,eyes, etc? Thanks.Continue
I am writing this because i just am frustrated by the lack of concern for what i had happened and the fact that I should be getting home help. It is a little long but please read this so i can at least feel I am okay to wait til i see the new…Continue
Started by Becky Smith. Last reply by Jill McLaren on Thursday.
update on me, physical therapy is not so good on my left leg, water therapy does help my balance some. but left leg is weak, hardly no feeling from knee down, starting too lose it my knee also. after therapy jm in wheel chair a couple of days, what…Continue
Started by Betty Corey. Last reply by Jill McLaren on Thursday.
I have an issue with my swallowing and by ny throat i feel something there. The swallowing seems to be in my chest where my syrinx is along with a swollen disc i am assuming by where it is difficult. the feeling in my neck is like something is…Continue
Started by Becky Smith. Last reply by Becky Smith on Wednesday.
Posted by Ashley Matos on September 18, 2015
Posted by Betty Corey on September 5, 2015
Posted by Betty Corey on September 30, 2015
by Syringomyelia & Chiari Network Added September 15, 2015 at 10:39am
Carion Fenn Foundation is a Non Profit Corporation, we are thankful for the support of the Patti Dawson Award, making it possible to have a foundation that will help provide support around the world, help increase awareness about Syringomyelia & Chiari Malformation.
We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:
We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.
Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally:
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