Syringomyelia (SM) Sear-IN-go-my-EEL-ya: also known as SM, is a Syrinx (also known as a tubular filled cyst) that forms inside of the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the center of the spinal cord.
Chiari Malformation (CM) Key-Ar-ee-mal-for-MAY-shun: When the “tonsils” of the brain stem fall below the base of the skull, it cuts off or blocks the flow of Cerebral Spinal Fluid that runs between the brain and the spinal cord.
Rare Disease: There are over 7000 known rare diseases/disorders. 1 in 12 Canadians will be affected by a rare disease. Rare in the USA, when it affects fewer than 200,000 Americans at any given time. In Europe when a disease affects fewer than 1 in 2000 person, the disease is defined as rare.
Chronic Disease: A chronic disease is one lasting 3 months or more, by the definition of the U.S. National Center for Health Statistics. Chronic diseases generally cannot be prevented by vaccines or cured by medication, nor do they just disappear.
Carion Fenn Foundation is a registered charity established to promote health by providing support services and resources for chronic disease management, while educating the public and those suffering with Syringomyelia and Chiari malformation about rare diseases.
On a recent segment on the TV show "The Doctors", the hosts discussed whether or not staying up late is bad for your health. One of the hosts mentioned that this habit is associated with other qualities that could lead to poor health, such as…Continue
Recreational marijuana was legalized in Canada on October 17, which brings up an interesting topic: medical marijuana use.
Has anyone tried marijuana for pain relief or other conditions?
Did it help? Do you still use it…Continue
My E-Petition to the #GovernmentofCanada to recognize Rare Disease Day Federally will be presented 3pm eastern today by MP @MPCelina. I stand with our #raredisease community & I hope our will government will too.…Continue
Hello everyone,I have been have on and off problems with breathing and ticklish throat also get a dry mouth at night while sleeping, I have noticed my neck around my throat area has become enlarged. I am wondering anyone experience thyroid problems…Continue
Started by Shaun Kelly in Sample Title on Thursday.
Looking for help advice,I am suffering from bad reflux abdomen pain been going on for about a year now.I have had the camera treatment and say nothing wrong and is to to with my syrinx. I have tumor T9 to T11 and my syrinx is elongates the full…Continue
G'day Everyone, I am concerned at the lack of discussion on this site and wonder why discussion has drop off. I have found this site the best for it. I have tried the facebook sites etc but find they do not have the same…Continue
by Carion Fenn Network Added June 10, 2016 at 1:35am
by Carion Fenn Network Added December 5, 2015 at 9:40am
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