Breaking Down Pain
Host: Carion Fenn Foundation in partnership with Ajax Public Library
Presenter: Matthew Burns, Pain Specialist
Register and attend our monthly support group meeting and enter to win a FREE Treatment Session/ Consultation from the Presentation Expert. at https://www.eventbrite.ca/e/breaking-down-pain-tickets-28305904723
How to access support:
1) Location - Ajax Public Library (Main Branch): 55 Harwood Avenue South Ajax ON L1S 2H8 Canada.
2) Online - Skype: https://meet.lync.com/carionfennfoundation-carionfenn/cgf/C7NR38PN
3) Phone: +1 (647) 749-7011 Conference ID: 9833479
Find a local number: https://dialin.lync.com/carionfenn.org/smcm
Syringomyelia (SM) (Sear-IN-go-my-EEL-ya); also known as SM, is a Syrinx (also known as a tubular filled cyst) that forms inside of the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the center of the spinal cord.
Chiari Malformation (CM) (Key-Ar-ee-mal-for-MAY-shun); are structural defects in the cerebellum, the part of the brain that controls balance. When the “tonsils” of the brain stem fall below the base of the skull, it cuts off or blocks the flow of Cerebral Spinal Fluid that runs between the brain and the spinal cord.
Rare Diseases/ Disorders: There are over 7000 known rare diseases/disorders. 1 in 12 Canadians will be affected by a rare disease. Rare in the USA, when it affects fewer than 200,000 Americans at any given time. In Europe when a disease affects fewer than 1 in 2000 person, the disease is defined as rare. 50% of rare diseases touch children.
Lori Hart has been our rock in supporting everyone, now she need our support. I'm sure you all know who she is, always welcoming, saying hello and wishing you all a happy birthday. Now she need our support. Recently…Continue
Libby Walden has brought it to our attention the her beloved husband Jimmy has lost his battle with Syringomyelia on the 23rd of October.
please send her and her family your prayers and condolences…Continue
Are you good at engaging in conversation? Do you want to help people and let them know that they aren't alone on this journey?
THEN WE WANT YOU!!!!!
If your interested in volunteering please leave me a comment below, I look forward…Continue
What do you guys do when you are frustrated? I have tried everything to keep it down. i do not need the stress. I am being told my syrinx as small as it is, got smaller. I have bladder issues, have trouble pooping (sorry tmi), my lower half loses…Continue
Started by Becky Smith. Last reply by Becky Smith Jan 6.
Hi everyone!I was wondering if anyone has had tethered cord surgery? I would sincerely appreciate your knowledge and/or experience. I was referred by my neurosurgeon to see a spinal neurosurgeon and he talked about tethered cord surgery and also…Continue
Started by Mary Rudy (SM). Last reply by Adriana (SM) Jan 1.
Chiari 0 Chiari I Malformation (CMI) is one of several identified malformations of the hindbrain, which consists of the cerebellum, pons, and medulla oblongata. Additionally, the back part of the skull (posterior fossa) is too small, and the…Continue
Started by Abby. Last reply by Becky Smith Dec 28, 2016.
Posted by Becky Smith on December 20, 2016
Posted by Mary Rudy (SM) on December 8, 2016
Posted by Betty Corey on January 10, 2017
by Carion Fenn Network Added June 10, 2016 at 1:35am
by Carion Fenn Network Added December 5, 2015 at 9:40am
by Carion Fenn Network Added September 15, 2015 at 10:39am
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