Become a Subscriber to our Network, and help support our programs. When you chose to become a subscriber, we will send you a Syringomyelia or Chiari Malformation Wristband, and a brochure, along with a thank you letter for your…Continue
If you are passionate about helping to provide support for those affected with Syringomyelia & Chiari Malformation and want to do more to help support our community and increase awareness. We want you on our team. Please comment here, or send…Continue
This is a bit long but here it goes,A little background on me: In my professional life, I was a Quality Engineer, it's in my blood. I started at the bottom and worked my way up, the old fashion way. It's also my personality type that drove me to the…Continue
Started by SM Debiann. Last reply by SM Debiann Jan 23.
I have a question.It is my understanding that even though they go hand in hand a syrinx and syringomyelia are 2 different things. Following a spinal cord injury 25% of patients develop a syrinx but it is only when the syrinx starts to fill with…Continue
Started by Morag Mackay (SM). Last reply by Morag Mackay (SM) Jan 23.
Disconnected (1 online)
You are disconnected from chat. Connect to join the chat.
Sign up to chat on Carion Fenn Syringomyelia & Chiari Network.
Carion Fenn Foundation coming soon, we are thankful for the support of the Patti Dawson Award, making it possible to have a foundation that will help provide support around the world, help increase awareness about Syringomyelia & Chiari Malformation.
We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:
We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.
Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally: