Syringomyelia (SM) Sear-IN-go-my-EEL-ya: also known as SM, is a Syrinx (also known as a tubular filled cyst) that forms inside of the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the center of the spinal cord.
Chiari Malformation (CM) Key-Ar-ee-mal-for-MAY-shun: When the “tonsils” of the brain stem fall below the base of the skull, it cuts off or blocks the flow of Cerebral Spinal Fluid that runs between the brain and the spinal cord.
Rare Disease: There are over 7000 known rare diseases/disorders. 1 in 12 Canadians will be affected by a rare disease. Rare in the USA, when it affects fewer than 200,000 Americans at any given time. In Europe when a disease affects fewer than 1 in 2000 person, the disease is defined as rare.
Chronic Disease: A chronic disease is one lasting 3 months or more, by the definition of the U.S. National Center for Health Statistics. Chronic diseases generally cannot be prevented by vaccines or cured by medication, nor do they just disappear.
Carion Fenn Foundation is a registered charity established to promote health by providing support services and resources for chronic disease management, while educating the public and those suffering with Syringomyelia and Chiari malformation about rare diseases.
Health 180 with Carion Fenn is a tv show on Rogers TV Durham, examining healthcare options in Durham Region through patient stories, doctor and expert health & wellness advice to help you live your healthiest life. We cover a wide range of topics on ailments that are affecting the community and address the concerns from the general public. Carion talks to both doctors and health experts on treatments or tips that are best for viewers and addresses any preventative measures that can be taken. You can watch the show online through the below links. The show is available Daily at https://www.rogerstv.com/show?lid=12&rid=2&sid=7713
Tea Talk for health and wellness: https://www.rogerstv.com/show?lid=12&rid=2&sid=7713&gid=307887
The long road back following a fire at Lakeridge Health, Port Perry. https://www.rogerstv.com/show?lid=12&rid=2&sid=7713&gid=308722
The Shoulder Centre at Lakeridge Health.https://www.rogerstv.com/show?lid=12&rid=2&sid=7713&gid=309512
Thank you for watching. If you are local and would like to share your story, please reach out to me. We are currently in talks with Rogers TV Durham for a third season.
greetings comrades when I am spreading awareness, discussing or just talking about sm, people ask me what the symptoms are thinking they might possibly have it and better check this out. this blog will create a list compiled by us and…Continue
So frustrated. Dr. Charles Tator Diagnosed me with mild chiari malformation. Just realizing no chiari was found during my special pregnancy program when I was pregnant which I went through a very detailed medical approach with so many medical…Continue
Hello everyone,I have been have on and off problems with breathing and ticklish throat also get a dry mouth at night while sleeping, I have noticed my neck around my throat area has become enlarged. I am wondering anyone experience thyroid problems…Continue
I am thinking of going to see an osteopath. I would sincerely appreciate your personal experience if you have sm and have seen an osteopath. Can seeing an osteopath harm us?Just do not know what to do anymore.....Waiting anxiously!MaryContinue
Looking for help advice,I am suffering from bad reflux abdomen pain been going on for about a year now.I have had the camera treatment and say nothing wrong and is to to with my syrinx. I have tumor T9 to T11 and my syrinx is elongates the full…Continue
by Carion Fenn Network Added June 10, 2016 at 1:35am
by Carion Fenn Network Added December 5, 2015 at 9:40am
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