Syringomyelia (SM) (Sear-IN-go-my-EEL-ya); also known as SM, is a Syrinx (also known as a tubular filled cyst) that forms inside of the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the center of the spinal cord.
Chiari Malformations (CM) (Key-Ar-ee-mal-for-MAY-shun); are structural defects in the cerebellum, the part of the brain that controls balance. When the “tonsils” of the brain stem fall below the base of the skull, it cuts off or blocks the flow of Cerebral Spinal Fluid that runs between the brain and the spinal cord.
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We are so glad that you have joined us on the journey to understanding and dealing with Syringomyelia and Chiari Malformation. These are conditions that should not have to be faced alone. Our site is supported completely by…Continue
Next Support Group Meeting May 30, 2015 4pm Est We are here for you!
Carion Fenn Foundation & Syringomyelia & Chiari Network Present: Our Next Support Group Meeting May 30, 2015 4pm-6pm. Join us, we are talking about learning to…Continue
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My wife will be having the decompression surgery within the next couple weeks. The NS said that they will be cutting a section of hair out from the back of her head. The section he mentioned is fairly large. They will also have electrodes on her…Continue
Started by PrinceK. Last reply by Abby yesterday.
Next Support Group Meeting May 30, 2015 4pm Est We are here for you!Carion Fenn Foundation & Syringomyelia & Chiari Network Present: Our Next Support Group Meeting May 30, 2015 4pm-6pm. Join us, we are talking about learning to accept the…Continue
Started by Syringomyelia & Chiari Network on Sunday.
I have syrinx from t6-t10 and is 3mm in width (prob had all my life but found on mri in 2005)I have been told by neurologist and gp that is of no concern as has not changed and is not cause of my pain, dizziness, tachycardia etc. I was under…Continue
Started by Lisa (SM). Last reply by Lisa (SM) on Friday.
I am actually posting this on behalf of my wife. In the past few weeks she was diagnosed with Chiari 1 with Syringomyelia. Her Syrinx is the largest any of the Dr's and Radiologist have ever seen. They have said she is a walking medical marvel in…Continue
Started by PrinceK. Last reply by PrinceK on Friday.
Simpsonville, SC, United States
Glide, OR, United States
Toronto, Ontario, Canada
Weibern, Rhineland-Pfalz, Germany
Orlando, FL, United States
Carion Fenn Foundation is a Non Profit Corporation, we are thankful for the support of the Patti Dawson Award, making it possible to have a foundation that will help provide support around the world, help increase awareness about Syringomyelia & Chiari Malformation.
We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:
We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.
Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally:
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