Vicky Bunker SM CM Online
The 2015 Crossfit Open has started and now you will see the improvements that are made since my Sub Cranial Decompression Surgery (Chiari Malformation) on July 13th, 2014. This is the first of five episodes dedicated to reconstructing my fitness…Continue
I know there are no doctors or nurses that are on here or that want to give medical advice, i'm just looking for an opinion. I promise not to hold you to it. I have attached 3 slices of an old scan that I have been looking…Continue
After all these years of thinking i was getting the treatment i rightfully deserved for my SM... I literally read through my files and found im just a research paper for my neurologist!!! It took me over a year to find him because everyone turned me…Continue
Started by Shie Weaver 9 hours ago.
I have a question for everyone that is experiencing pain caused by Syringomyelia. How do your loved ones, signigicant other understand the level of pain you are going through, how do you explain it to them and how do they help you?
Started by Irina Dell. Last reply by Christine Webb (SM) USA REP yesterday.
This is a bit long but here it goes,A little background on me: In my professional life, I was a Quality Engineer, it's in my blood. I started at the bottom and worked my way up, the old fashion way. It's also my personality type that drove me to the…Continue
Started by SM Debiann. Last reply by Janet Halberstadt SM Feb 18.
I asked a prof recently about the enlarged central canal that was found on my mrt.hes a specialist on sm and told me what I have isnt sm but enlarged central canal.that it is completely unproblematic and almost NEVER turns into sm. it is central and…Continue
Started by Mousse K (SM). Last reply by Christine Webb (SM) USA REP Feb 17.
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Carion Fenn Foundation coming soon, we are thankful for the support of the Patti Dawson Award, making it possible to have a foundation that will help provide support around the world, help increase awareness about Syringomyelia & Chiari Malformation.
We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:
We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.
Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally: