Topic: Tea Talk for Health & Wellness
Host: Carion Fenn Foundation in partnership with Ajax Public Library and supported by Rotary Club of Ajax.
Presenters: Sophia Bishop
Note: We are accessible WORLDWIDE, allowing everyone to join in on our support group meetings. Come and see, talk with the expert in REAL time 6:30-8:30 pm EST TICKETS ARE FREE.
How to access support:
1) Location - Ajax Public Library (Main Branch): 55 Harwood Avenue South Ajax ON L1S 2H8 Canada.
2) Online - Skype: https://meet.lync.com/carionfennfoundation-carionfenn/cgf/V04PSQ63
3) Phone: +1 (647) 749-7011 Conference ID: 38291877
Find a local number: https://dialin.lync.com/carionfenn.org/smcm
Syringomyelia (SM) (Sear-IN-go-my-EEL-ya); also known as SM, is a Syrinx (also known as a tubular filled cyst) that forms inside of the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the center of the spinal cord.
Chiari Malformation (CM) (Key-Ar-ee-mal-for-MAY-shun); are structural defects in the cerebellum, the part of the brain that controls balance. When the “tonsils” of the brain stem fall below the base of the skull, it cuts off or blocks the flow of Cerebral Spinal Fluid that runs between the brain and the spinal cord.
Rare Diseases/ Disorders: There are over 7000 known rare diseases/disorders. 1 in 12 Canadians will be affected by a rare disease. Rare in the USA, when it affects fewer than 200,000 Americans at any given time. In Europe when a disease affects fewer than 1 in 2000 person, the disease is defined as rare. 50% of rare diseases touch children.
Just curious as to what everyones views are about genetic testing. Some feel its a good thing to have done others say why put yourself through additional stress. Lets hear from our members
Have you ever been violated? Are you frequently violated? Do you think its ok to be violated? Do you think you should do something about it? Do you have have a responsibility to complain?
When you are violated it litterally takes…Continue
We all know the difficulties we face with any doctors not taking our concerns seriously. If you could have a consequence free day... what would you want to tell your doctor to get them to completely understand how them not taking you serious…Continue
Started by Lori Hart (SM) Canadian Rep on Tuesday.
I am curious, given the advancements in our medical technology, do you feel that genetic testing is a good or bad thing?How many of you would want to know what you may or may not be predisposed to having at some pount during your lifetime? Continue
Started by Lori Hart (SM) Canadian Rep Jul 16.
Posted by Lori Hart (SM) Canadian Rep on July 19, 2017
Posted by Lori Hart (SM) Canadian Rep on July 18, 2017
Posted by Lori Hart (SM) Canadian Rep on July 16, 2017
by Carion Fenn Network Added June 10, 2016 at 1:35am
by Carion Fenn Network Added December 5, 2015 at 9:40am
by Carion Fenn Network Added September 15, 2015 at 10:39am
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