Syringomyelia (SM) (Sear-IN-go-my-EEL-ya); also known as SM, is a Syrinx (also known as a tubular filled cyst) that forms inside of the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the center of the spinal cord.
Chiari Malformations (CM) (Key-Ar-ee-mal-for-MAY-shun); are structural defects in the cerebellum, the part of the brain that controls balance. When the “tonsils” of the brain stem fall below the base of the skull, it cuts off or blocks the flow of Cerebral Spinal Fluid that runs between the brain and the spinal cord.
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I want to ask members what symptoms did you start out with? I have a small syrinx in my neck. I have a very stiff neck and can move it only a short distance in either direction. I have had transient pains on the left side of my neck and at the…Continue
I went back to my NS after all my MRIs, he told me I have good new there are no tumors, so I asked what caused my syrnix, he said well you have a herniated disc just below, that is probably the cause. What about my pain in am back and arms. He…Continue
as the days go on sometimes i feel as if there is nothing wrong with me, that maybe it is my mind playing tricks on me but then the following day comes and as i prepare myself for it i realize i need longer to get ready, longer to wake, longer to…Continue
Hi, I wanted to apologize to the people at the support group meeting. I am vision impaired, so I have to practice with my screenreader to learn to navigate my way around on the computer. The google play must have been new so when I logged on trying…Continue
Started by Betty Corey on Sunday.
My primary care doctor suggested that when I meet with the neurologist who to ask her to rule out MS as a cause of my syrinx. Has anyone else been told this?
Started by Teresa Nov 19.
Went to a neurologist today who told me that my syrinx is to small to cause any problems. In the last year, I've had intense pressure and itching in my face, constant headaches, blurred vision, slurred speech, difficulty concentrating in addition to…Continue
Started by Amber Wood. Last reply by Teresa Nov 17.
Posted by Betty Corey on November 15, 2015
Posted by Haley Steinbach on September 1, 2015
Posted by Lauren Pace on November 13, 2015
by Syringomyelia & Chiari Network Added September 15, 2015 at 10:39am
Carion Fenn Foundation is a Non Profit Corporation, we are thankful for the support of the Patti Dawson Award, making it possible to have a foundation that will help provide support around the world, help increase awareness about Syringomyelia & Chiari Malformation.
We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:
We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.
Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally:
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